There are hundreds of Australians living with a lung transplant every day.
They are being given a second chance to live with thanks to the generosity of their donor and donor family.
It is exciting how much patient outcomes have improved since Australia’s first lung transplant in 1986.
Lung transplant patients in Australia continue to benefit from the expertise of world-class specialists, surgeons and lung transplant clinical & research teams.
As a great example, The Alfred’s patient outcomes following lung transplantation remain the world’s best with 96% @ 1year and 74% @ 5year survival rates; figures that are significantly better than those reported by the International Society for Heart and Lung Transplantation Registry.
If you are a lung transplant patient in Australia you’re in excellent hands.
We also realise that you will understandably have many questions about having a lung transplant.
The following resources have been compiled to help you.
Note: While we make every effort to make sure the information in this website is accurate and informative, the information does not take the place of professional or medical advice. We can’t guarantee accuracy of any third party content or that it will apply to you.
Lungitude Online Peer Support Network
Join our Lungitude Online Peer Support Network and connect with other lung transplant patients and caregivers.
We recognise that there is a need for further support for patients beyond just the physical, and that every lung transplant patient has a caregiver who also needs support. We have established a Lungitude Online Peer Support Network, with support from the Lung Foundation, to enable the sharing of ideas and tips for managing the practical and emotional challenges of the lung transplant journey.
Lungitude Patient and Caregiver Video Series
Our first video features four lung transplant patients sharing their journeys and mental health tips. If you are interested in participating in future videos please contact us.
Discover practical tips from four lung transplant patients who share their journeys and what has helped them.
Lungitude Patient Booklet
We recognise that there is a need for further support for patients who may dealing with stress. Our Coping with Stress as a Transplant Patient Booklet is a great resource that you can read online or download for printing. We encourage you to share it widely with anyone who may benefit.
We are actively developing our own resources so stay tuned for even more to come. There are some exciting plans!
You may also like to check out our Facebook Page where we share all sorts of articles and stories.
Transplant Australia is a charity which supports transplant recipients and their families; people on the waiting list, donor families, living donors, healthcare professionals and all those touched by organ and tissue donation.
Transplant Australia has extensive information about Living with your Transplant which steps you through what to expect from the few days through to what you can and can’t eat, to the way you manage relationships, sex, medication and travel, putting the power in your hands as you navigate life after transplant.
The Heart and Lung Transplant Trust (Victoria) Inc. (HLTTV) is a not-for-profit association whose membership consists of heart and lung transplant patients, recipients, their carers and families.
HLTTV are associated with The Alfred Hospital in Melbourne and are a resource for support, education and advocacy. If you are a patient or carer of The Alfred then you may be eligible for their Financial and Social Support. They also have Recipient Videos and a Gallery of Recipients enjoying life.
The Lung Foundation is a charity that delivers life-changing research and programs that support and provide hope to people of all ages with a lung disease, and their families, at every stage of the journey.
They are focused on the needs of those living with lung disease, so their resources are also useful for patients who are pre transplant managing their condition.
Their Resources section is comprehensive including:
- Maintaining Movement Videos – Armchair and Kitchen exercises
- Better Living with Exercise Handbook (click here for hardcopy version)
- Home Oxygen Booklet
- Outdoor Air Pollution and Lung Disease Fact Sheet
- Indoor Environment and Lung Health Fact Sheet
- The Common Cold Fact Sheet
- Fitness to Fly Fact Sheet
- Influenza Fact Sheet
- Lung Function Tests Fact Sheet
- Bronchoscopy Fact Sheet
- Portable Oxygen Travel Tips Fact Sheet
- Home Oxygen Paper
- Lung Transplantation Fact Sheet
- Know Pneumonia: Signs and Symptoms
- Know Pneumonia Infographic
- The Lung Fact Sheet
- Support Groups